Information At Your Fingertips. Responsum for PF App Review.
Welcome back to BreatheLiveFit! This week I was very fortunate to partner with my friends at Responsum for PF for an in-depth review of their new app! It was really an honor that they would reach out to me for my take on their app. Although I have partnered with them on this blog post, I want all my readers to know that my opinions on this app are entirely my own. Responsum has not influenced me at all to give them a good review. I am going to give you the “low down” on this app and my thoughts on how it could possibly benefit you!
First of all, I love how Responsum has partnered with the Pulmonary Fibrosis Foundation (PFF) in the development of this application. If you have pulmonary fibrosis, you know that having the PFF as a partner is a solid way to launch an app geared toward its patient population. All of the content on this FREE application is “expertly vetted” so that the users can have confidence that the information that they are getting is trustworthy and reliable. Researching your diagnosis online can be a scary thing. Not only do you have to weed through what information is valid but what is relevant to your particular diagnosis. Responsum for PF can be your “one-stop-shop” for research on pulmonary fibrosis.
Getting familiar with the Responsum for PF app…
After downloading the application, other than entering your email, you then select which type of “member” you would classify yourself. You can choose from Patient, Caregiver, Healthcare Professional, Advocate, or Other. This is helpful information because it tells Responsum how to tailor your newsfeed within the app. There are optional fields to populate if you wish to curate a profile, including uploading a picture, adding a bio, and a location. This again is an option, but it allows those users the ability to develop a community within the app.
At the bottom of the app's main page, you will see a “menu” with several options. The first one is “Newsfeed.” This is where you can find tons of curated and vetted articles on learning more about pulmonary fibrosis, managing pulmonary fibrosis, and research being done for the diagnosis. Each of these articles has been combed through by different subject matter experts at the Pulmonary Fibrosis Foundation and validated for their accuracy. You will notice that at the bottom of each article, you can give feedback to Responsum for PF on how you felt about each article, comment (just like you can on various social media platforms), share it with others, and “save” it to “your notebook” within the application in order to reference or read it again later.
Another menu option is “My Care.” This is an optional place where you can keep your health information easily accessible within the app. As you know, when you have a chronic condition it is wise to keep an updated list of medications and any other pertinent health data with you at all times. Responsum for PF has given you a way to store that information within the app on your smart device so that you have access to it wherever you go. At the top of this page, you have the option (if needed) to share this information with your doctor by emailing them the data you have entered within the app or you can download it as a pdf document. Pretty cool! Right?!
The “Resources” tab on the menu bar is where you can access different outlets for further resources when it comes to pulmonary fibrosis. There are links on this tab to the Pulmonary Fibrosis Foundation which will give you information on PFF Care Center network sites and various support groups sponsored by the organization. There is a link to PF Warriors volunteer group which hosts regular meetings live and online. There is also a link to find out about various clinical trials that may be available to you in your area.
In my professional and personal opinion, I believe that there isn’t much that Responsum for PF hasn’t thought about. The app is very user friendly and easy to navigate. From an administrative standpoint, the people working at Responsum for PF are easily accessible for communication on questions that you might have regarding the application and sincerely want their users to enjoy and benefit from using the Responsum for PF app. If you have pulmonary fibrosis or are involved in the care of someone with pulmonary fibrosis, I would recommend downloading the Responsum for PF app.
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